FPIES What is it?

Food Protein-Induced Entercolitis Syndrome (FPIES)– is when the body reacts to the protein in food.  For some children, one food is the trigger and for others multiple foods trigger the response.  Read more about FPIES here. Last week we began to suspect Elizabeth might have FPIES.  She has vomited multiple times per day her entire… Continue reading FPIES What is it?

Two Steps Forward… One step back.

We’ve been working on bolus syringe feeding for the last couple weeks.  Elizabeth was doing well– tolerating as much as 2-3oz in one sitting.  I was still spending all day feeding her, but the freedom to have her off the pump (and backpack) during the day was worth it!  Yesterday, our darling started retching every… Continue reading Two Steps Forward… One step back.

Breast Pump Wean

I’ve been MIA! Life has been BUSY! That’s how it goes with seven kiddos and a medically needy little one.  I had initially hoped to continue to pump until Elizabeth’s adjusted first birthday (Sept. 9) which would have been 15 months actual.  My milk supply dropped to only 10oz a day and it was still… Continue reading Breast Pump Wean