Elizabeth Joy Update

Elizabeth is now 22 months old.  It’s been a rough start to 2018– with two surgeries under her belt already and a 3rd on the horizon.  In late January, Lizzie got bilateral tubes put in her ears– and thankfully, she hasn’t had an ear infection since!  Then on March 1, she had a fundoplication and… Continue reading Elizabeth Joy Update

Blending Food for Tube Feeding

We are now at 20 months of tube feeding with Miss Elizabeth.  Every day is a juggle to figure out exactly what she needs to grow and reduce vomiting episodes.  Here is her current  blend– Elizabeth gets about 900 calories/day right now because we are trying to make up for lost weight that’s occurred over… Continue reading Blending Food for Tube Feeding

Lizzie’s Dietary Insurance Drink aka Healthy, Homemade Pediasure.

It’s no secret that I am a fan of healthy, homemade foods.  We don’t particularly care for processed foods.  We also try to avoid ingredients that do not come with health attributes.  When you have a child that is tube fed or needs a supplement to help encourage adequate growth, the medical world is quick… Continue reading Lizzie’s Dietary Insurance Drink aka Healthy, Homemade Pediasure.

Breast Pump Wean

I’ve been MIA! Life has been BUSY! That’s how it goes with seven kiddos and a medically needy little one.  I had initially hoped to continue to pump until Elizabeth’s adjusted first birthday (Sept. 9) which would have been 15 months actual.  My milk supply dropped to only 10oz a day and it was still… Continue reading Breast Pump Wean

Breastmilk, Meat “Formula”, & Tube Feeding

Miss Elizabeth has been receiving all human milk since her premature birth at 26 weeks.  In the NICU, she received a human milk based fortifier and some donor milk to supplement as my supply was building (I had major difficulty establishing a milk supply this time).  For a short while, she also had 4ml of… Continue reading Breastmilk, Meat “Formula”, & Tube Feeding

Real Food via G-Tube

If you’ve read through this site, you are probably aware that I do not plan to feed Elizabeth formulas.  Just because she has a feeding tube, doesn’t mean she should exist on a diet of corn syrup and vitamins.  Our plan is to transition from breastmilk to a real food, blended diet over the next… Continue reading Real Food via G-Tube

My Whole 30 Journey So Far…

This round hasn’t been too difficult.  Likely that’s because I’ve done whole 30’s several times in the past and I don’t eat a lot of junk food as a norm anyway… although, since little m=Miss Elizabeth Joy was born, I’ve had a little too much sugar. I digress… I keep things pretty simple- rotating veggies… Continue reading My Whole 30 Journey So Far…