FPIES What is it?

Food Protein-Induced Entercolitis Syndrome (FPIES)– is when the body reacts to the protein in food.  For some children, one food is the trigger and for others multiple foods trigger the response.  Read more about FPIES here. Last week we began to suspect Elizabeth might have FPIES.  She has vomited multiple times per day her entire… Continue reading FPIES What is it?

Weight Gain Shakes

Pediasure is marketed as a “nutrition drink” and “as part of a healthy diet”.  Holy cats– honestly, I’m shocked that any parent falls for this– but marketing is full of tricks and deception to convince the average person to buy the marketed product. Pediasure is comprised of water, corn maltodextrin (glycemic index of 130!), sugar… Continue reading Weight Gain Shakes

A Vegan Blend…

We are omnivores around here– which means there is room for vegetarian and vegan meals in our lives.  We aim to eat at least half our plates in produce at every meal! Today, I decided to try beans in Lizzie’s blend for the first time! I’m also letting go of the calorie counting mentality… so…… Continue reading A Vegan Blend…

Adaptive Clothing & Bolus Feeding

We are always in search of adaptive clothing that will make our life easier with a feeding tube. Last year, I supported a Kickstarter campaign for Tubesies– a bodysuit made for easy access to the feeding tube (G-Tube or GJ-Tube). Because Elizabeth is small and a slow grower, she can still wear her original Tubesies–… Continue reading Adaptive Clothing & Bolus Feeding

Two Steps Forward… One step back.

We’ve been working on bolus syringe feeding for the last couple weeks.  Elizabeth was doing well– tolerating as much as 2-3oz in one sitting.  I was still spending all day feeding her, but the freedom to have her off the pump (and backpack) during the day was worth it!  Yesterday, our darling started retching every… Continue reading Two Steps Forward… One step back.

Real Food for Toddlers Blended Plan One

I am currently batch preparing food for eight days and then blending one meal at a time.  This is the simplest way for me to make sure Elizabeth is getting a varied diet throughout the day.  She has volume tolerance issues and a lot of food intolerances. Why eight days? Because I put 2oz of… Continue reading Real Food for Toddlers Blended Plan One

Blending Food for Tube Feeding

We are now at 20 months of tube feeding with Miss Elizabeth.  Every day is a juggle to figure out exactly what she needs to grow and reduce vomiting episodes.  Here is her current  blend– Elizabeth gets about 900 calories/day right now because we are trying to make up for lost weight that’s occurred over… Continue reading Blending Food for Tube Feeding