Here’s a list of what Elizabeth “eats” every day– I’ve written it in the form we recognize of meals and snacks. In reality, the few enjoy life mini chips and a couple licks of PB is all she takes in orally. We also give an extra 16-24oz of water daily. Breakfast: 1/2 cup quinoa with… Continue reading What my Toddler “EATS”
Food Protein-Induced Entercolitis Syndrome (FPIES)– is when the body reacts to the protein in food. For some children, one food is the trigger and for others multiple foods trigger the response. Read more about FPIES here. Last week we began to suspect Elizabeth might have FPIES. She has vomited multiple times per day her entire… Continue reading FPIES What is it?
Pediasure is marketed as a “nutrition drink” and “as part of a healthy diet”. Holy cats– honestly, I’m shocked that any parent falls for this– but marketing is full of tricks and deception to convince the average person to buy the marketed product. Pediasure is comprised of water, corn maltodextrin (glycemic index of 130!), sugar… Continue reading Weight Gain Shakes
We are omnivores around here– which means there is room for vegetarian and vegan meals in our lives. We aim to eat at least half our plates in produce at every meal! Today, I decided to try beans in Lizzie’s blend for the first time! I’m also letting go of the calorie counting mentality… so…… Continue reading A Vegan Blend…
We are always in search of adaptive clothing that will make our life easier with a feeding tube. Last year, I supported a Kickstarter campaign for Tubesies– a bodysuit made for easy access to the feeding tube (G-Tube or GJ-Tube). Because Elizabeth is small and a slow grower, she can still wear her original Tubesies–… Continue reading Adaptive Clothing & Bolus Feeding
We’ve been working on bolus syringe feeding for the last couple weeks. Elizabeth was doing well– tolerating as much as 2-3oz in one sitting. I was still spending all day feeding her, but the freedom to have her off the pump (and backpack) during the day was worth it! Yesterday, our darling started retching every… Continue reading Two Steps Forward… One step back.
Breastmilk continues to have value into the toddler years. If Elizabeth had been able to nurse, she would still be receiving mama’s milk as her primary nutrition. Because of having to exclusively pump and the challenges I experienced with maintaining milk supply, we are now out of mamas milk. I’m mostly okay with that– knowing… Continue reading Breastmilk for Toddlers